The Battle Against Rare Diseases: A Story of Hope with SLK Foundation Founder, Steve Trott
July 17, 2023
Unlock the inspiring journey of the SLK Foundation as your host, Nell Tice, and special guest Steve Trott, share the heartfelt story behind this remarkable organization. Be moved by the personal experience of Steve's nephew Sean, whose battle with a rare terminal illness, MPS2, or Hunter Syndrome, was the catalyst for the formation of this life-changing foundation. Discover the devastating impact of this illness, and the treatment options available, as we peel back the layers of this mysterious disease.
Strap in as we navigate the intricacies of the SLK Foundation, a unique organization that's all about raising awareness as much as it is about raising funds. We're sustaining and supporting 15 wonderful children across 12 families in five states, all through the power of word-of-mouth. Get a glimpse of my own journey with the SLK Foundation, which began when I was approached by Steve and looking for a way to help as I was diagnosed with scoliosis at a tender age of six.
Lastly, we spotlight our exciting upcoming event, the Summer Bash. This is not just another fundraising event; it's an opportunity for you to meet and connect with the beautiful families and brave children we work with. Mark your calendars for a night filled with raffles, auctions, dinner, and live music on August 25th, 6-10 pm, at the picturesque Melhorn Manor in Mount Joy, Pennsylvania. Join us in making a difference, one child at a time, and experience the true power of community spirit and the profound impact of the SLK Foundation.
Support the SLK Foundation and learn more: https://www.slkfoundation.org/
Purchase tickets for the annual Summer Bash: https://www.facebook.com/events/248566177665391/?acontext=%7B%22event_action_history%22%3A%5B%5D%7D
(0:00:00) - The SLK Foundation Journey
(0:09:51) - Hunter Syndrome and SLK Foundation Awareness
(0:20:59) - Fundraising Event for Small Organization
(0:28:40) - Support for Families With Rare Diseases
Support the SLK Foundation and learn more:
https://www.slkfoundation.org/Purchase tickets for the annual Summer Bash:
https://www.facebook.com/events/248566177665391/?acontext=%7B%22event_action_history%22%3A%5B%5D%7DDrop us a line!
[email protected]Click the link to grab a copy of Nell's #1 Bestselling book, Curvature of the Career: https://www.amazon.com/Curvature-Career-Twists-Pursue-Happiness-ebook/dp/B09VD5VNKC/ref=sr_1_1?crid=3ADN1EYOBN906&keywords=curvature+of+the+career&qid=1647545221&sprefix=curvature+%2Caps%2C60&sr=8-1
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